Read the article “New
hope for cystic fibrosis” on page A1 of the Monday, May 18, 2015 edition of
The Seattle Times.
Vocabulary: Define each term and then use it in a sentence to demonstrate
are the symptoms of cystic fibrosis?
Describe what Dr. Bonnie Ramsey refers to as a “breakthrough” in treating cystic
were the results of the Orkambi drug trials?
many pills per day do people given Orkambi need to take?
might benefit from Orkambi?
are the cystic fibrosis drugs Orkambi and Kalydeco (ivacaftor) similar?
two drugs are combined to make Orkambi?
does Orkambi work?
is one potential concern of the new drug Orkambi?
this video clip
to learn more about the causes and symptoms of cystic fibrosis.
fibrosis is a genetic disorder. Other common genetic disorders besides CF
include down sydrome, fragile X syndrome, Klinefelter sydrome, sickle cell
disease, and Turner syndrome. Choose one of these genetic disorders or another
of your choosing (there are about 1000) and create an informational brochure.
Include information about the disorder, its effects on people, how it is
treated, and other important information.
genetic counselor is a trained professional that helps families understand their
possible risks of having a child with a genetic disorder. Find out more about
this profession by answering the following questions. Where do genetic
counselors work? What are their roles and responsibilities? How does someone
know whether or not they should visit a genetic counselor?
Genetic testing on babies can be done in a number of different ways. Explain
the differences between each of the following tests. Amniocentesis, chronic
villus sampling (CVS), and a karyotype.
Science Time is posted to the Web on Wednesdays.
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the electronic edition for your class, please register